Norfolk MND Care and Research Network

The Norfolk MND Care and Research Network was established in June 2017, supported by the MND Association. Our aim is to provide a coordinated and accessible service for people affected by MND and their families. The network operates from the Norfolk and Norwich University Hospital, but serves all people in Norfolk living with MND.

 Role of the network

  • To be a single point of access for you and your family from the time of diagnosis.
  • To provide clinics which offer an holistic assessment of your needs and a supportive environment for you to discuss your care.
  • To provide a coordinated link between the different professionals involved in your care, including those from both hospital and community services.
  • To provide you with accurate and timely information regarding your condition. This may include signposting and referring you to other services as appropriate.
  • To offer you opportunities to be involved in relevant research if you wish.

Clinics

As part of the development of the network, we are keen to make our clinics as accessible as possible to people with MND. In addition to two clinics each month at the Norfolk and Norwich Hospital, we also have dedicated MND clinics at Cromer Hospital, Beccles Hospital and Queen Elizabeth Hospital King’s Lynn.

The core team

Our core team includes Consultant Neurologists who have expertise in diagnosing MND and its management. We also have a Palliative Care Consultant who has expertise in symptom management and supportive care.

The MND Care and Research Network Coordinator is Helen Copsey Tel: 01603 647221 or helen.copsey@nnuh.nhs.uk who may be contacted for non-urgent enquiries. If you are unable to reach the Coordinator you may wish to contact your Neurology Specialist Nurse or key worker for advice.

In the clinic you will usually have the opportunity to see members of our core MND team as described above. In addition, some of our clinics involve the following people.

  • A researcher from the University of East Anglia (UEA).
  • A representative from the MND Association
  • Medical or health care students observing the clinic

Please tell us if you would prefer to just see your core team.

The network team

It is important to emphasise that the wider network team consists of a range of health and social care staff from across a number of specialities, including your GP and neurology specialist nurse. They will support you and can often see you closer to home, in between your clinic appointments.