Progression and support

How it progresses

Motor neurone disease gets gradually worse over time. Moving around, swallowing and breathing get increasingly difficult, and treatments like a feeding tube or breathing air through a face mask may be needed.

The condition is eventually fatal, but how long it takes to reach this stage varies a lot. A few people live for many years or even decades with motor neurone disease.

You might prefer not to know how long you might live. Speak to your GP or care team if you want to find out more.

More information and support

Having motor neurone disease can be very challenging for you, your friends and your family.
Speak to your GP or care team if you’re struggling to cope and need more support.

You may also find it useful to read more information and advice from the Motor Neurone Disease Association on:

  • what motor neurone disease is
  • advice if you’ve just been diagnosed with motor neurone disease
  • living with motor neurone disease
  • help that’s available for people with motor neurone disease
  • support for friends, family and carers