Children’s

The Jenny Lind Children’s Hospital offers a comprehensive oncology service for children with cancer and their families. The service operates within the Anglia Cancer Network as a shared care centre with Addenbrooke’s Hospital in Cambridge. The Paediatric Oncology service based in Norwich is the largest shared care centre in the region. In addition to providing high quality anti cancer treatments (chemotherapy), full holistic supportive care for medical, emotional and psychological needs is also provided and recognised as equally important to the child and family’s wellbeing. Additionally, the team work closely with the Children’s Hospice at Quidenham, thereby providing a seamless service for our patient population. Paediatric Palliative Care is also provided in conjunction with the True Colours Team (TCT) of nurses based at East Anglia’s Children’s Hospice (EACH). The latter service is provided on a 24/7 basis when the child’s needs require it and can be provided in the community, hospice or hospital.

Conditions Treated

Leukaemias (commonest form of childhood cancer) and lymphomas, plus a range of solid tumours, most commonly brain tumours.

Many childhood cancer treatment s are based on National trials and both the consultants who deliver the childhood cancer service in Norwich are Local Collaborators to the current National Leukaemia Trial. Research is an active component of the Paediatric Department at the NNUH.

An off treatment service is also provided and children who have received treatment for childhood cancer are continued to be monitored when treatment has completed.

Non cancer blood conditions are also treated at the Jenny Lind Children’s Hospital – this service is provided jointly by the named Consultant Paediatricians (Drs Ponnampalam/Soman) and Consultant Haematologists (Dr’s Lyall).

The Jenny Lind Children’s Hospital also treats children with less common blood conditions including Sickle Cell Disease, in conjunction with Addenbrooke’s Hospital in Cambridge and the North Middlesex Hospital in London.

Multi-Disciplinary Team

If you have recently been told that your child has or is suspected of having cancer, you may already have had the opportunity to meet some of the people involved in their care. These health professionals work within a team which is called a specialist Multidisciplinary Team (MDT) which is based at the Norfolk and Norwich University Hospitals Foundation Trust. The members of the Paediatric Oncology MDT are experts at treating and managing childhood cancer.  They are involved with investigations, diagnosis and ongoing treatment. The team also monitor the later effects of childhood cancer treatment so children with a diagnosis of cancer, will continue to be monitored till their 16th birthday, following which, care will be transitioned to the teenage and young adult services.  The MDT holds weekly meetings to discuss all patients currently undergoing active treatment, and once a month the MDT is video-linked with Addenbrooke’s Hospital.

Clinics:

Wednesday’s(weekly) Paediatric Oncology MDT treatment clinic 2-6pm

Tuesday’s (4thweek) Off treatment Haematology Clinic 1-4pm Dr Jo Ponnampalam

Tuesday’s(4th week)  Off treatment Haematology Clinic 4-7pm Dr Archana Soman

Tuesday’s( 2nd week)  Off treatment Solid Tumour Clinic 1-4pm Dr Jo Ponnampalam

Tuesday’s( 3rd week)  Non malignant Haematology Clinic 1-4pm  Dr Jo Ponnampalam/Dr Lyall

Visiting Consultant Outreach Clinics:

Dr James Nicholson (Paediatric Oncologist Addenbrookes Hospital) – every quarterly

Dr Michael Gattens(Paediatric Haematologist Addenbrookes Hospital) – every quarterly

Dr Anne Yardumian(Haemoglobinopathy Haematologist, North Middlesex Hospital, London) – twice/year

Consultant Paediatricians

Clinical Nurse Specialist

  • Rosie Larkins – Tel 01603 287852
  • Kate Stanton

MDT Co-ordinator

  • Vicky Dyson – Tel 01603 286527

Consultant Haematologists

Paediatric Pharmacist

  • Rosalind Howe

CLIC Sargent Social Worker

  • Jane Hartley

Clinical Paediatric Psychologist

  • Kiki Mastroyannopoulou

Paediatric Dietician

  • Paula Corney

Departmental Information

For more information on our children’s services visit the Jenny Lind Children’s Hospital website.

Patient Support Services

Wiggly support group for parents

The group meets quarterly on the first Wednesday of each month in the ‘Big C’ Family Cancer Information and Support Centre at 7:30pm. The group aims to provide peer support to parent and carers of children and young people with cancer and also peer support and friendship to teenagers and young people with cancer. The group is run by parents.

The ‘Big C’ information and support centre

Spiritual care is available to any patient/parent requiring emotional care and support outside of the care offered by their doctor or nurse. Whilst this service covers religious care including advise on how to access other religious leaders, spiritual non-religious care is also offered.

There is a transition service available for leukaemia and lymphoma patients to the adult service for patients with haematological conditions. Transitional care for young people with solid tumour is under development.

There is also end of life care and bereavement support for patients and families in conjunction with the Children’s Hospice team at Quidenham.

Useful External Links

Wiggly Support Group

Big C Support Centre

Anglia Cancer Network

Children’s Cancer and Leukemia Group (CCLG)