Information for the Public
Taking part in research as a volunteer helps companies develop new drugs and helps clinicians understand more about diseases. If you have a particular illness and you would like to find out about research taking place in that area, you should discuss this with your clinician or GP who can advise you on any current research taking place. Visit the UK Clinical Trials Gateway website for information about clinical research trials running in the UK.
Another valuable resource for information about public involvement in research can be found on the Health Research Authority website.
Take part in research
Norfolk has a clear track record of investment in Patient and Public Involement (PPI) in research going back as far as July 2003 when the Patient and Public Involvement In Research (PPIRes) project commenced in its pilot phase in Norwich, funded through the NNUH-hosted East Norfolk and Waveney Research Consortium.
The NNUH has continued its support of PPIRes by providing funding for the development aspects of the project.
Members of the PPIRes panel serve the whole of Norfolk and Suffolk and have good working links with their counterparts across the region. For example, PPIRes has been able to contribute to the training needs of its panel of lay representatives by supporting a series of five workshops on “Demystifying the World of Research – A Programme for Community Representatives active in healthcare research”. This workshop has been delivered across the East of England and has had financial contributions from NNUH, Addenbrookes, MHRN, DeNDRoN. This example of collaborative and regional working is one that the NNUH will continue to support and champion in its role as host of the Clinical Research Network (Eastern).
PPIRes plays an active role in training clinical and academic researchers to understand and use PPI approaches to their work and their members are now acting as co-investigators on NIHR studies, e.g. on NIHR Programme: Norfolk Diabetes Prevention Study.
As a result of this type of training and support, Norwich PPIRes panel members have presented and contributed to masterclasses on both the cross-sectoral Community Participation in Research/ Fulbright Visiting Scholar Programme 2013 and the Annual NHS R&D Forum meeting 2013. PPIRes partnership with the UEA means it offers Visiting Researcher Rights to all PPIRes volunteers who are actively involved in funded research projects.
Jacqueline Romero is the PPIRes Co-ordinator who works alongside the members of the Volunteer Panel – a group of informed and trained individuals from a range of backgrounds.
PPIRes Co-Ordinator: Jacqueline Romero
Norfolk & Suffolk Primary & Community Care Research Office
South Norfolk CCG
Old Chapel Way
Broadland Business Park
Thorpe St Andrew
Tel: 01603 257009 Fax: 01603 257292
More information on PPIRes can be found here.
Why do researchers need PPIRes?
Involving PPIRes can help get research funded, since many funders now require demonstrable public involvement, and it can also bring a valuable alternative viewpoint from service users and carers.
PPIRes has been involved in many stages of research to date:
- Defining the questions to be answered
- Commenting on proposals and patient information documentation
- Sitting on steering groups
- Advising on the acceptability of study design
- Debating ethical and governance issues
- Serving on committees
- Promoting lay interpretations of research
- Promoting dissemination of research